Saturday, August 27, 2016

Who needs sleep? (well you're never gonna get it) ..BNL

...so I'm not really as bad as the guy who's been awake since the second World War, but some days I certainly feel like it. The worst part is that I actually DO sleep. Hell, sometimes I even take naps and I end up waking feeling the same or little better than when I first closed my eyes.

IDK--I suppose I shouldn't be this surprised or upset about it. When I was first diagnosed in early 2000's, the dr told me he saw the MS clearly, he was pretty positive on the chronic fatigue, and he wouldn't be surprised if I had a third or more neuro/musculature type problem but he wasn't able to say what. In the past few yrs the cognition has become a greater and greater problem for me, along with the fatigue. Cognition and memory issues have always been where the MS have hit me the worst the few times my course of DMDs needed to be switched or various illnesses caused more problems than anticipated.

The recent year, I've had a few episodes where simply lifting my hand/arm off the bed in the morning is a draining effort.  I may be like that in the morning and a few hours later I'll have a little more energy. or I'll be the same all day. My GP ran some tests and discovered my Epstein-Barr levels were incredibly high and all pointed to chronic since it had been going on for almost 2 months.

I vaguely remember the few days I stayed home sick w/ mono in the 8th grade. I was kinda tired, had a sore throat, and felt blah. Now, as an adult, it just down right sucks! I'll have a day, or even only a partial day when I feel alright and can play with the dog or something. Then I'll be back to staring off at the distance from the couch or at the back of my eyelids.