Tired..so worn out

Its amazing to realize how exhausting constant pain can be. Haven't been sleeping well to begin with anyway. My body has decided I've been on my "relaxation to help me sleep" med for too long and it stopped working. Now I haven't really slept easily for well over 3 - 4 weeks. My GP has tried to get me on a new med, but they either don't work at all or I'm having nasty side effects--and they don't really work entirely all THAT well.

Now with this new med and dosage, I get maybe a few minutes or hrs of sleep at a time. But its restless sleep, not a deep sleep where my mind calms and stops running in circles. Along with that, I've had an almost constant headache. Mostly it stays as a low, constant, background hum of pressure/pain going all across the entire front and top of my head. But it's also been spiking into agonizing migraines..

I've called the sleep dr who diagnosed, or rather pronounced, that I don't have sleep apnea. but the soonest he could see me is middle of next month. I could go to another sleep dr in the meantime, but I'd prefer to go with the one I'e already visited and is actually part of the same medical group as my neurologist, physical therapist,  yoga instructor...so info passes quickly between them all, especially since they are also in the same one flr building  and using the same computer system.

I think the med is also screwing w/ what little ability I have to regulate body temp (which isn't much). I get cold flashes that are so bad they are painful, esp in my extremities... I can't even hold my fingers close cuz they are so chilled they quickly freeze whatever body part I hold them against instead of being warmed by the 'body heat' I supposedly give off. And the cold spells have been worse and more frequent since beginning the new med.

My fatigue or the restless sleep or something is causing bruising...either I'm walking into more things & not remembering/feeling it or its being caused directly by the med..IDK, but some of them really hurt =/ Actually, pride aside, they mostly all hurt, just some a hell of a lot more than others and some of those aren't even really visible.

It's so damnably tiring to be dealing with the  headache pain that the OTC's I've tried won't touch and my migraine Rx barely deals w/ (and not for long). And trying to keep my fingers/nose/lips warm (and not blue) is another drain. Blankets, gloves, socks, etc don't help..even heated ones or heating pads..they just kinda trap in the cold air surrounding my limbs. The unexplained bruising that makes things rather...unpleasant...is getting worse almost daily

the runaround continues

Agreed w/ hubby that this whole SSA mess needed another call to see what was going on..tried to get a supervisor, but got stuck with a damn desk monkey again who did the whole 'gotta verify who you are and why you are calling..' bs. She again told me everything was in place for my Medicare to be withdrawn, but that the payment center had until the beginning of October to do so...this was just another chat so it won't be recorded in my file...again

So now... I REALLY don't know what the F** is going on!! no one can agree with anything any one else is telling me over at that department. Now I wonder if they're all sitting around with their thumbs up their asses. They don't note most of their calls cuz then the clients charts would be too "cluttered" and it would make too much work for the desk monkeys so there's no case #,  reference #,  or record of most calls into SSA. I know I'm a cynic...but since this is a government agency and bureaucracy tends to thrive on redundancy...I wonder if they don't want everything recorded to save their own asses on things said by ill informed idiots and people just placating callers by promising whatever they want to hear in these little 'chats' that don't actually result in changes to the charts. Like I said...cynic. Xb

SSA runaround

I am so far beyond irate! And I know posting this on a semi public forum is probably the dumbest thing ever since its bitching about my own government, but..oh-well… I’m not saying anything false, regardless what they say

I’ve been given the run-around by the *** SSA for the past *several* months. When I became eligible for Medicare, I promptly declined and mailed it back. I guess it never arrived. Or atleast, it never got entered correctly. So I’ve been trying to  correct this ***ing mistake since a month after enrollment. First, they say they FOUND the letter I had mailed back to decline Mecare. But (and I didn’t find this out until _much later_) since it was just a “chat” the SSA lady & I had it wasn’t rnoted in my records because conversations that don’t cause an actual change to a record does not get noted.

When my enrollment status didn’t change, I called again. They had to search again for the letter..they finally found it..but was told to call back in a few days to double check on the status of my enrollment.

When I called back..the person atleast saw that I had called the last time and I was told that they had the note and everything would go into effect at the beginning of the month and I should be reimbursed for the charges of the past months. Beginning of the month rolls around…no status change.  Just in case I give it ‘til Monday since the 1^st was a Saturday (tho that shouldn’t matter since it ‘should’ be an electronic change).

So I call _again_ Now, they CAN’T find the letter. Instead, I have to re-submit a request to withdraw from Medicare which will to effect this month (if I’m lucky) and I WON’T be reimbursed for their *****-up..I was told by three different agents the letter was there and I don’t know why it was never actually changed, noted or marked in the file. I understand they deal w/ millions of people a day or whatever the statistic they blurt out on the hold loop, but a simple check mark to change enrolled to un-enrolled while holding the letter or a few key strokes to type Medicare denial letter found or something like that would have been nice.

This whole thing is one big bundle of stress and a mess and its so ***’ed-up. I feel like someone at the SSA has been playing me for a fool and I’d love to go and smack some heads until I got some straight answers.